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Websites voor mensen met eigen ervaring met kanker

Het internet kan een nuttige plek zijn om informatie, hulpbronnen en verschillende perspectieven te vinden over kanker, rouw, verlies en verandering. Wanneer je iets onbekends of moeilijks meemaakt, kan betrouwbare informatie soms helpen om te begrijpen wat je doormaakt en de ervaring iets minder onzeker te laten voelen.

Iedereen ervaart kanker en de daarmee samenhangende verliezen anders, en misschien vraag je je af of wat je voelt “normaal” is of waarom je emoties van de ene op de andere dag veranderen. Betrouwbare informatie verkennen kan je helpen te begrijpen dat er een breed scala aan mogelijke reacties op ziekte en verlies bestaat, en dat er geen vaste of voorspelbare manier is om daardoorheen te bewegen.

Websites kunnen je ook helpen praktische steun te vinden, waaronder informatie over omgaan met verlies, iemand met kanker steunen, communiceren met familie en vrienden, en toegang krijgen tot professionele of gemeenschapsgerichte steun. Sommige delen ook persoonlijke verhalen die herkenning en een gevoel van verbondenheid kunnen bieden.

De hulpbronnen die hier zijn opgenomen, zijn geselecteerd om betrouwbare en steunende informatie te bieden. Verken ze in je eigen tempo en richt je op wat voor jou relevant voelt. Als het zoeken naar informatie overweldigend wordt of je angst vergroot, is het oké om even pauze te nemen en terug te komen wanneer je er klaar voor bent.

Alma Zois

almazois.gr

Engels

Offers resources on survivorship, body image, and psychosocial adjustment. It supports identity reconstruction and emotional well-being after cancer.

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Cancer Research UK

cancerresearchuk.org

Engels

Provides evidence-based information about coping with cancer, including emotional and psychological challenges.

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European Cancer Organisation

europeancancer.org

Engels

A Europe-wide organization connecting cancer communities and resources. It supports access to information, policy initiatives, and patient-centered care.

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Evita Cancro

evitacancro.org

Engels

A nonprofit organization that supports people who are or may be affected by hereditary cancer.

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Hellenic Cancer Federation (ELLOK)

ellok.org

Engels

A national network connecting cancer patient organizations in Greece. It helps individuals access information, advocacy, and support resources.

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Hellenic Cancer Society

cancerhellas.org

Engels

Provides information, psychosocial support services, and access to programs for patients and families in Greece. It helps individuals navigate both the medical and emotional aspects of cancer.

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Macmillan Cancer Support

macmillan.org.uk

Engels

A website with extensive information on cancer and its biopsychosocial consequences, as well as resources such as booklets, audiobooks, and blogs about cancer

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Maggie's

maggies.org

Engels

Maggie’s is a center that provides individual and group counseling, workshops, guidance on social rights, and other activities. Every Maggie’s center is a welcoming space where you can find support with financial worries, tips on managing stress, and a friendly place to go when you need someone to listen. In the website there is information as well as strategies on how to cope with the changes in your daily routine, work, school, and home life that come with living with cancer.

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The After Cancer

theaftercancer.com

Engels

A digital space that uses AI and clinical expertise to provide 24/7 guidance on lingering side effects and emotional shifts.

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What's Your Grief

whatsyourgrief.com

Engels

“What’s Your Grief” is particularly useful because it clearly and accessibly explains the invisible and ambiguous grief commonly experienced by people with cancer (such as the loss of identity, one’s body, or one’s former life). In addition, it offers practical, evidence-based articles that help people put a name to what they’re feeling and find concrete strategies for coping with these changes.

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Young Lives vs Cancer

younglivesvscancer.org.uk

Engels

An organization providing information on support groups for adolescents and young adults, addressing challenges they may face, such as survivor guilt, body image, fertility, etc.

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Liga Portuguesa Contra o Cancro

ligacontracancro.pt

Portugees

It offers specialized support services such as peer support groups and psycho-oncology. It provides support to patients and their families. It also addresses the grieving process following a loss. The “Vencer e Viver” Movement supports women, their families, and friends from the moment breast cancer is diagnosed.

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Mama Help

mamahelp.pt

Portugees

Mama Help is an organization that aims to serve as a comprehensive resource center open to everyone. It provides information and support in various areas, from the initial diagnosis through all stages of the disease, and in cases of recurrence, when the impact is even greater and support is most needed.

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Oncoglam

oncoglam.pt

Portugees

Beschrijving volgt binnenkort

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Slovensko društvo Hospic

hospic.si

Sloveens

Accompanying the dying and their relatives on their journey

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YARN project logo

Deze inhoud is gemaakt tijdens het project YARN, medegefinancierd in het kader van het EU4Health-programma in 2025-2028 (subsidieovereenkomst nr. 101219053).