Publikacje
Wszystko, co projekty YARN – European Youth Cancer Network i EU-CAYAS-NET opublikowały dla osób dotkniętych chorobą nowotworową, organizacji pacjenckich, klinicystów i decydentów: przeczytaj każdy dokument w całości na tej stronie, skorzystaj z interaktywnych narzędzi lub pobierz oryginalny plik PDF i jego oficjalne tłumaczenia.
YARN – European Youth Cancer Network
Projekt YARN →
Zestaw narzędziNarzędzie interaktywneEquity, Diversity and Inclusion Self-Assessment Checklist for Patient Organisations
Ten-question self-assessment checklist by Youth Cancer Europe (YARN project) for patient organisations to review equity, diversity and inclusion practice.
2026 · 32 stron · PDF w 11 językach
WytyczneGuidelines for Inclusive Events for People Affected by Cancer
Practical guidelines from Youth Cancer Europe's YARN project for organisers planning inclusive, accessible events for people affected by cancer.
2026 · 32 stron
PrzewodnikProtocols for Measuring Quality of Life, Physical Fitness, and Lifestyles of Young People Living with and Beyond Cancer
This protocol provides a standardised and adaptable framework for assessing health-related quality of life, physical fitness and lifestyle behaviours among young people living with and beyond cancer within the YARN network.
2026 · 48 stron
EU-CAYAS-NET – EU Network of Youth Cancer Survivors
Wyniki EU-CAYAS-NET →
RaportD6.3Sustainability Strategy, including Evaluation Report
EU-CAYAS-NET deliverable D6.3 (2025) presenting the sustainability strategy for the European Network of Youth Cancer Survivors and a project evaluation.
2025 · 20 stron
RaportD6.2Dissemination Report - focusing on highly visible project events
EU-CAYAS-NET deliverable D6.2 (2025) reporting the project's dissemination activities and highly visible events for young cancer survivors in Europe.
2025 · 49 stron
BroszuraBeyond Survival: Shaping the Future of Cancer Care of Young People
EU-CAYAS-NET outcome brochure (v1.0, July 2025) by CCI-E and Youth Cancer Europe listing the project's publications, videos and tools in eight areas.
2025 · 58 stron
ZaleceniaJoint Recommendations for Mental Health and Psychosocial Care in CAYA Cancer Survivorship
EU-CAYAS-NET consensus recommendations on mental health and psychosocial follow-up care for childhood, adolescent and young adult cancer survivors.
2025 · 94 stron
Zestaw narzędziLet’s Talk About … Mental Health & Psychosocial Care During and Beyond Childhood, Adolescent and Young Adult Cancer
Pocket cards from the EU-CAYAS-NET project on mental health and psychosocial care during and beyond childhood, adolescent and young adult cancer.
2025 · 22 stron · PDF w 14 językach
Biała księgaOptimizing Quality of Life after Youth Cancer
EU-CAYAS-NET white paper by CCI Europe on mental health, education and career, transition and long-term follow-up care for young cancer survivors.
2025 · 36 stron
StanowiskoD3.5Position Paper on Mental Health & Psychosocial Care, Transition and Long-Term Follow-Up Needs during CAYA Cancer Survivorship
EU-CAYAS-NET deliverable D3.5: a position paper for policy makers and healthcare providers on mental health, education, transition and long-term follow-up needs of young cancer survivors in Europe.
2025 · 25 stron
RaportCareer Support for Young People Living With and Beyond Cancer
EU-CAYAS-NET report by the Medical University of Vienna and CCI Europe reviewing career support interventions for young cancer survivors.
2024 · 12 stron
ZaleceniaD3.4Recommendations for LTFU Care to Be Seen as the Final Step of Successful Cancer Treatment
EU-CAYAS-NET deliverable D3.4 by PanCare and partners: recommendations for organising long-term follow-up care for childhood, adolescent and young adult cancer survivors in Europe.
2024 · 17 stron · PDF w 8 językach
ZaleceniaD3.1Recommendations for Mental Health & Psychosocial Care after CAYA Cancer - Standard, Not Luxury
EU-CAYAS-NET deliverable D3.1: survey findings, pocket-card materials and four policy actions on psychosocial care for young cancer survivors.
2024 · 12 stron · PDF w 9 językach
DeklaracjaBarcelona Declaration
Declaration signed in Barcelona on 22 October 2024 by EU-CAYAS-NET partners and Spanish organisations: four actions on long-term follow-up care.
2024 · 1 strona
Wytyczne kliniczneD3.3Transition Guideline
EU-CAYAS-NET deliverable D3.3: development, scope and 44 recommendations of the guideline on transition of young cancer survivors to adult care.
2024 · 12 stron · PDF w 9 językach
RaportD3.2Train-the-Trainer Concept for HCPs on Education & Career Support for Survivors
EU-CAYAS-NET deliverable D3.2: development, Vienna pilot and final nine-module Train-the-Trainer concept on education and career support for survivors.
2024 · 16 stron
Zestaw narzędziEquity, Diversity and Inclusion Principles in Cancer Care
EU-CAYAS-NET train-the-trainer toolkit by Youth Cancer Europe and Inclusive Employers: workbook, activities and six training sessions on equity, diversity and inclusion in cancer care.
2024 · 168 stron · PDF w 8 językach
Zestaw narzędziTrain-the-Trainer for Education & Career Support
EU-CAYAS-NET Train-the-Trainer manual: nine modules with goals, methods and worksheets on education and career support for young cancer survivors.
2024 · 40 stron
DeklaracjaVienna Declaration
Declaration signed in Vienna on 27 June 2024 by EU-CAYAS-NET partners: four actions to improve mental health and psychosocial care for young survivors.
2024 · 1 strona
DeklaracjaVilnius Declaration
Declaration signed in the Lithuanian Parliament on 27 May 2024 by EU-CAYAS-NET partners: four actions on transition to adult cancer care.
2024 · 5 stron
ZaleceniaRecommendations for Equitable, Diverse, and Inclusive Cancer Care in Europe
EU-CAYAS-NET policy recommendations by Youth Cancer Europe on equity, diversity and inclusion in cancer care, with actions for EU policymakers, services and patient groups.
2024 · 32 stron · PDF w 9 językach
StanowiskoMinimum Standards of Specialist Adolescent and Young Adult (AYA) Cancer Care Units
Youth Cancer Europe position paper (EU-CAYAS-NET): a care checklist and eight-point roadmap for adolescent and young adult cancer units in Europe.
2024 · 38 stron · PDF w 10 językach
RaportD6.1Communication and Dissemination Plan
EU-CAYAS-NET deliverable D6.1 (updated August 2023) by CCI Europe and YCE: target audiences, key messages, channels, events, metrics and partner guidance.
2023 · 20 stron
RaportD1.1Report on the Ambassador Programme
EU-CAYAS-NET deliverable D1.1 reporting on the Youth Cancer Survivor Ambassador Programme, the February 2023 Brussels workshop, selection and next steps.
2023 · 34 stron
RaportD2.2Social Media Metrics
EU-CAYAS-NET deliverable D2.2 reporting beatcancer.eu, Discord, Facebook, Instagram and YouTube metrics for January to May 2023 against project targets.
2023 · 16 stron
RaportD2.1Network Platform
EU-CAYAS-NET deliverable D2.1 by POLA on how the beatcancer.eu Network Platform was specified, designed, built and launched in December 2022.
2023 · 14 stron
PrzewodnikPeer Visit as Research Method in EU-CAYAS-NET
EU-CAYAS-NET methodology for peer visits as a research method: participant criteria, selection, training, host preparation, reporting and risks.
2023 · 14 stron
Wszystkie dokumenty są współfinansowane przez Unię Europejską w ramach programu EU4Health. Wyrażone poglądy i opinie należą wyłącznie do autorów i niekoniecznie odzwierciedlają stanowisko Unii Europejskiej ani HaDEA.