Publikácie
Všetko, čo projekty YARN – European Youth Cancer Network a EU-CAYAS-NET publikovali pre ľudí zasiahnutých rakovinou, pacientské organizácie, klinických pracovníkov a tvorcov politík: prečítajte si každý dokument v plnom znení na tejto stránke, využite interaktívne nástroje alebo si stiahnite pôvodné PDF a jeho oficiálne preklady.
YARN – European Youth Cancer Network
Projekt YARN →
Súbor nástrojovInteraktívny nástrojEquity, Diversity and Inclusion Self-Assessment Checklist for Patient Organisations
Ten-question self-assessment checklist by Youth Cancer Europe (YARN project) for patient organisations to review equity, diversity and inclusion practice.
2026 · 32 strán · PDF v 11 jazykoch
UsmerneniaGuidelines for Inclusive Events for People Affected by Cancer
Practical guidelines from Youth Cancer Europe's YARN project for organisers planning inclusive, accessible events for people affected by cancer.
2026 · 32 strán
PríručkaProtocols for Measuring Quality of Life, Physical Fitness, and Lifestyles of Young People Living with and Beyond Cancer
This protocol provides a standardised and adaptable framework for assessing health-related quality of life, physical fitness and lifestyle behaviours among young people living with and beyond cancer within the YARN network.
2026 · 48 strán
EU-CAYAS-NET – EU Network of Youth Cancer Survivors
Výsledky EU-CAYAS-NET →
SprávaD6.3Sustainability Strategy, including Evaluation Report
EU-CAYAS-NET deliverable D6.3 (2025) presenting the sustainability strategy for the European Network of Youth Cancer Survivors and a project evaluation.
2025 · 20 strán
SprávaD6.2Dissemination Report - focusing on highly visible project events
EU-CAYAS-NET deliverable D6.2 (2025) reporting the project's dissemination activities and highly visible events for young cancer survivors in Europe.
2025 · 49 strán
BrožúraBeyond Survival: Shaping the Future of Cancer Care of Young People
EU-CAYAS-NET outcome brochure (v1.0, July 2025) by CCI-E and Youth Cancer Europe listing the project's publications, videos and tools in eight areas.
2025 · 58 strán
OdporúčaniaJoint Recommendations for Mental Health and Psychosocial Care in CAYA Cancer Survivorship
EU-CAYAS-NET consensus recommendations on mental health and psychosocial follow-up care for childhood, adolescent and young adult cancer survivors.
2025 · 94 strán
Súbor nástrojovLet’s Talk About … Mental Health & Psychosocial Care During and Beyond Childhood, Adolescent and Young Adult Cancer
Pocket cards from the EU-CAYAS-NET project on mental health and psychosocial care during and beyond childhood, adolescent and young adult cancer.
2025 · 22 strán · PDF v 14 jazykoch
Biela knihaOptimizing Quality of Life after Youth Cancer
EU-CAYAS-NET white paper by CCI Europe on mental health, education and career, transition and long-term follow-up care for young cancer survivors.
2025 · 36 strán
Pozičný dokumentD3.5Position Paper on Mental Health & Psychosocial Care, Transition and Long-Term Follow-Up Needs during CAYA Cancer Survivorship
EU-CAYAS-NET deliverable D3.5: a position paper for policy makers and healthcare providers on mental health, education, transition and long-term follow-up needs of young cancer survivors in Europe.
2025 · 25 strán
SprávaCareer Support for Young People Living With and Beyond Cancer
EU-CAYAS-NET report by the Medical University of Vienna and CCI Europe reviewing career support interventions for young cancer survivors.
2024 · 12 strán
OdporúčaniaD3.4Recommendations for LTFU Care to Be Seen as the Final Step of Successful Cancer Treatment
EU-CAYAS-NET deliverable D3.4 by PanCare and partners: recommendations for organising long-term follow-up care for childhood, adolescent and young adult cancer survivors in Europe.
2024 · 17 strán · PDF v 8 jazykoch
OdporúčaniaD3.1Recommendations for Mental Health & Psychosocial Care after CAYA Cancer - Standard, Not Luxury
EU-CAYAS-NET deliverable D3.1: survey findings, pocket-card materials and four policy actions on psychosocial care for young cancer survivors.
2024 · 12 strán · PDF v 9 jazykoch
VyhlásenieBarcelona Declaration
Declaration signed in Barcelona on 22 October 2024 by EU-CAYAS-NET partners and Spanish organisations: four actions on long-term follow-up care.
2024 · 1 strana
Klinické usmernenieD3.3Transition Guideline
EU-CAYAS-NET deliverable D3.3: development, scope and 44 recommendations of the guideline on transition of young cancer survivors to adult care.
2024 · 12 strán · PDF v 9 jazykoch
SprávaD3.2Train-the-Trainer Concept for HCPs on Education & Career Support for Survivors
EU-CAYAS-NET deliverable D3.2: development, Vienna pilot and final nine-module Train-the-Trainer concept on education and career support for survivors.
2024 · 16 strán
Súbor nástrojovEquity, Diversity and Inclusion Principles in Cancer Care
EU-CAYAS-NET train-the-trainer toolkit by Youth Cancer Europe and Inclusive Employers: workbook, activities and six training sessions on equity, diversity and inclusion in cancer care.
2024 · 168 strán · PDF v 8 jazykoch
Súbor nástrojovTrain-the-Trainer for Education & Career Support
EU-CAYAS-NET Train-the-Trainer manual: nine modules with goals, methods and worksheets on education and career support for young cancer survivors.
2024 · 40 strán
VyhlásenieVienna Declaration
Declaration signed in Vienna on 27 June 2024 by EU-CAYAS-NET partners: four actions to improve mental health and psychosocial care for young survivors.
2024 · 1 strana
VyhlásenieVilnius Declaration
Declaration signed in the Lithuanian Parliament on 27 May 2024 by EU-CAYAS-NET partners: four actions on transition to adult cancer care.
2024 · 5 strán
OdporúčaniaRecommendations for Equitable, Diverse, and Inclusive Cancer Care in Europe
EU-CAYAS-NET policy recommendations by Youth Cancer Europe on equity, diversity and inclusion in cancer care, with actions for EU policymakers, services and patient groups.
2024 · 32 strán · PDF v 9 jazykoch
Pozičný dokumentMinimum Standards of Specialist Adolescent and Young Adult (AYA) Cancer Care Units
Youth Cancer Europe position paper (EU-CAYAS-NET): a care checklist and eight-point roadmap for adolescent and young adult cancer units in Europe.
2024 · 38 strán · PDF v 10 jazykoch
SprávaD6.1Communication and Dissemination Plan
EU-CAYAS-NET deliverable D6.1 (updated August 2023) by CCI Europe and YCE: target audiences, key messages, channels, events, metrics and partner guidance.
2023 · 20 strán
SprávaD1.1Report on the Ambassador Programme
EU-CAYAS-NET deliverable D1.1 reporting on the Youth Cancer Survivor Ambassador Programme, the February 2023 Brussels workshop, selection and next steps.
2023 · 34 strán
SprávaD2.2Social Media Metrics
EU-CAYAS-NET deliverable D2.2 reporting beatcancer.eu, Discord, Facebook, Instagram and YouTube metrics for January to May 2023 against project targets.
2023 · 16 strán
SprávaD2.1Network Platform
EU-CAYAS-NET deliverable D2.1 by POLA on how the beatcancer.eu Network Platform was specified, designed, built and launched in December 2022.
2023 · 14 strán
PríručkaPeer Visit as Research Method in EU-CAYAS-NET
EU-CAYAS-NET methodology for peer visits as a research method: participant criteria, selection, training, host preparation, reporting and risks.
2023 · 14 strán
Všetky dokumenty sú spolufinancované Európskou úniou v rámci programu EU4Health. Vyjadrené názory a stanoviská sú výlučne názormi autorov a nemusia nevyhnutne odrážať názory Európskej únie ani HaDEA.