Increased childhood cancer survival rates have spurred a new body of research pertaining to the cancer-survivorship continuum. Literature suggests a lack of research and guidelines for care at the end of treatment. To improve the transition to survivorship and determine any posttreatment challenges, this study explored the experiences of childhood cancer survivors (CCSs), parents/caregivers, and pediatric oncology health care professionals (HCPs) at the end of treatment.
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We Are Done! Now What? Exploring End of Treatment Needs of Childhood Cancer Survivors and Their Parents
This study employed a mixed methods design. End of Treatment Questionnaires were completed by survivors of childhood cancer and parents/caregivers within 6 months of completing treatment, and by pediatric oncology health care professionals.
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Continue reading · Late Effects of TreamentOutcome Indicators Make Quality of Life After Pediatric Cancer MeasurableThe focus of childhood cancer treatment is to achieve a cure for all patients. With improving survival rates, the emphasis has shifted towards assessing long-term health outcomes as a measure of quality care. The International Childhood Cancer Outcome Project involved various stakeholders, including survivors, pediatric oncologists, medical, nursing, and paramedical care providers, as well as psychosocial and neurocognitive care providers. They collaborated to develop a set of core outcomes for different types of childhood cancers, allowing for outcome-based evaluation of childhood cancer care. Through surveys and online focus groups, unique candidate outcome lists were created for 17 types of childhood cancer. A two-round Delphi survey involving 435 healthcare providers from 68 institutions resulted in the selection of four to eight physical core outcomes and three aspects of quality of life per pediatric cancer subtype. These core outcomes, measured through various instruments, provide valuable information to patients, survivors, and healthcare providers, enabling assessment of institutional progress and comparisons with other facilities.
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