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Spletne strani za ljudi z lastno izkušnjo raka

Internet je lahko uporaben prostor za iskanje informacij, virov in različnih pogledov na raka, žalovanje, izgubo in spremembo. Ko doživljate nekaj neznanega ali težkega, lahko zanesljive informacije včasih pomagajo osmisliti to, skozi kar greste, in naredijo izkušnjo nekoliko manj negotovo.

Vsakdo raka in z njim povezane izgube doživlja drugače, zato se lahko sprašujete, ali je to, kar čutite, “normalno”, ali zakaj se vaša čustva spreminjajo iz dneva v dan. Raziskovanje zaupanja vrednih informacij vam lahko pomaga razumeti, da obstaja širok razpon mogočih odzivov na bolezen in izgubo ter da ne obstaja določen ali predvidljiv način, kako iti skozi to.

Spletne strani vam lahko pomagajo najti tudi praktično podporo, vključno z informacijami o soočanju z izgubo, podpori nekomu z rakom, komunikaciji z družino in prijatelji ter dostopu do strokovne podpore ali podpore v skupnosti. Nekatere delijo tudi osebne zgodbe, ki lahko ponudijo prepoznanje in občutek povezanosti.

Viri, vključeni tukaj, so bili izbrani zato, da ponudijo zanesljive in podporne informacije. Raziskujte jih v svojem tempu in se osredotočite na tisto, kar se vam zdi pomembno. Če iskanje informacij postane preplavljajoče ali poveča vašo tesnobo, je v redu, da si vzamete odmor in se vrnete, ko boste pripravljeni.

Slovensko društvo Hospic

hospic.si

Accompanying the dying and their relatives on their journey

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Alma Zois

almazois.gr

Angleščina

Offers resources on survivorship, body image, and psychosocial adjustment. It supports identity reconstruction and emotional well-being after cancer.

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Cancer Research UK

cancerresearchuk.org

Angleščina

Provides evidence-based information about coping with cancer, including emotional and psychological challenges.

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European Cancer Organisation

europeancancer.org

Angleščina

A Europe-wide organization connecting cancer communities and resources. It supports access to information, policy initiatives, and patient-centered care.

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Evita Cancro

evitacancro.org

Angleščina

A nonprofit organization that supports people who are or may be affected by hereditary cancer.

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Hellenic Cancer Federation (ELLOK)

ellok.org

Angleščina

A national network connecting cancer patient organizations in Greece. It helps individuals access information, advocacy, and support resources.

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Hellenic Cancer Society

cancerhellas.org

Angleščina

Provides information, psychosocial support services, and access to programs for patients and families in Greece. It helps individuals navigate both the medical and emotional aspects of cancer.

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Macmillan Cancer Support

macmillan.org.uk

Angleščina

A website with extensive information on cancer and its biopsychosocial consequences, as well as resources such as booklets, audiobooks, and blogs about cancer

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Maggie's

maggies.org

Angleščina

Maggie’s is a center that provides individual and group counseling, workshops, guidance on social rights, and other activities. Every Maggie’s center is a welcoming space where you can find support with financial worries, tips on managing stress, and a friendly place to go when you need someone to listen. In the website there is information as well as strategies on how to cope with the changes in your daily routine, work, school, and home life that come with living with cancer.

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The After Cancer

theaftercancer.com

Angleščina

A digital space that uses AI and clinical expertise to provide 24/7 guidance on lingering side effects and emotional shifts.

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What's Your Grief

whatsyourgrief.com

Angleščina

“What’s Your Grief” is particularly useful because it clearly and accessibly explains the invisible and ambiguous grief commonly experienced by people with cancer (such as the loss of identity, one’s body, or one’s former life). In addition, it offers practical, evidence-based articles that help people put a name to what they’re feeling and find concrete strategies for coping with these changes.

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Young Lives vs Cancer

younglivesvscancer.org.uk

Angleščina

An organization providing information on support groups for adolescents and young adults, addressing challenges they may face, such as survivor guilt, body image, fertility, etc.

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Liga Portuguesa Contra o Cancro

ligacontracancro.pt

Portugalščina

It offers specialized support services such as peer support groups and psycho-oncology. It provides support to patients and their families. It also addresses the grieving process following a loss. The “Vencer e Viver” Movement supports women, their families, and friends from the moment breast cancer is diagnosed.

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Mama Help

mamahelp.pt

Portugalščina

Mama Help is an organization that aims to serve as a comprehensive resource center open to everyone. It provides information and support in various areas, from the initial diagnosis through all stages of the disease, and in cases of recurrence, when the impact is even greater and support is most needed.

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YARN project logo

Ta vsebina je nastala v okviru projekta YARN, ki ga je v obdobju 2025-2028 sofinanciral program EU4Health (sporazum o nepovratnih sredstvih št. 101219053).