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Books for people with lived experience of cancer

Reading can be a meaningful way of exploring experiences of cancer, grief, loss, and change. When we are going through something difficult, finding the words to describe what we are feeling is not always easy. Books can sometimes help us make sense of emotions that may feel confusing, overwhelming, or difficult to explain. Reading about characters or people who have experienced illness, uncertainty, loss, or significant change can also create a sense of recognition and connection, reminding us that we are not the only ones to experience these feelings.

In this way, books can offer different perspectives on the experience of cancer and on the many forms of grief and loss that can accompany it. Some stories focus directly on illness or treatment, while others explore themes such as changes to the body, identity, relationships, uncertainty, hope, love, resilience, and finding meaning when life does not unfold as expected. You may find yourself relating to a character, a particular experience, or even just a sentence that puts into words something you have been feeling. Sometimes, seeing an experience reflected in a story can help us feel more able to name, understand, or make space for our own.

At the same time, reading does not always have to be a way of engaging with difficult experiences. There may be moments when you simply do not want to think about cancer or grief, and reading can offer a welcome pause. Entering another world through a story can provide a temporary escape from difficult thoughts and emotions, creating space for rest, imagination, or simply a moment of normality (in this case check out the Book Library). You can choose what you read, when you read it, and how much you want to engage with it. If a particular book feels too difficult, brings up emotions you are not ready to face, or simply does not feel right for you at the moment, it is completely okay to stop reading and return to it later — or choose something else.

With this in mind, the books included in this section have been selected to offer a range of perspectives and experiences related to cancer, grief, loss, and change. Some may help you feel understood or put words to an experience that has been difficult to express; others may offer companionship, comfort, or simply a moment away from it all. There is no particular order in which they need to be read, and no expectation that every book will feel right for you. Explore them at your own pace and choose the stories that feel most meaningful, comforting, or relevant to you.

At the Will of the Body

Arthur W. Frank · 1991

It shows how serious illness alters one’s identity, body and social roles. It helps cancer survivors to recognise and acknowledge invisible losses and to reconstruct a narrative following their illness.

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Between Two Kingdoms: A Memoir of a Life Interrupted

Suleika Jaouad

This memoir explores the experience of illness and survivorship, focusing on identity, loss of normal life, and the transition back into everyday reality. It helps readers process feelings of disconnection, grief for their “old life,” and the challenges of rebuilding meaning after cancer.

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Everything Changes

Kairol Rosenthal · 2009

An insightful guide that brings together the raw and honest stories of young adults facing cancer, exploring their struggles with identity, relationships, and the healthcare system while offering practical advice and a deeply human perspective on living with illness.

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In My Time of Dying

Sebastian Junger · 2024

It explores mortality in an accessible and non-threatening way, encouraging reflection on finitude, fear and human connection. It helps those who have experienced cancer to come to terms with the reality of death and to transform that experience into existential clarity.

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In-Between Days

Teva Harrison · 2016

This memoir tells the story of a young woman living with metastatic breast cancer, using drawings and short reflections to explore fear, love, and uncertainty while finding moments of hope and meaning in everyday life.

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Man's Search for Meaning

Viktor E. Frankl

While not specifcally about cancer, this is a great book for anyone facing survivors guilt. Frankl explores how we find meaning when we are the ones who made it through. It is very helpful for those struggling with the "why me"of survival

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Proof of Heaven

Eben Alexander · 2012

It explores near-death experiences and spirituality. Can be useful for people facing life-threatening situations who are seeking meaning, hope and reconciliation with the fact of mortality.

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The Bright Hour

Nina Riggs · 2017

A moving memoir about living with terminal cancer. It gently explores grief, identity, relationships, and the experience of living with uncertainty.

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The Cancer Journals

Audre Lorde · 1980

This memoir recounts the author’s experience with breast cancer, exploring pain, identity, and survival while challenging social expectations about illness, femininity, and the meaning of living with and beyond disease.

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Ways to Live Forever

Sally Nicholls · 2008

A child narrates his illness journey. Helps with meaning-making and emotional expression.

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When You're Sick or in the Hospital

Tom McGrath · 2002

It offers simple, empathetic language to help people understand vulnerability, fear and the loss of independence. It helps people who have experienced cancer to come to terms with difficult emotions and to feel supported throughout their experience of illness and hospitalisation.

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Zac and Mia

A. J. Betts · 2013

Shows peer connection between two teens with cancer. Supports identification and reduces isolation.

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Salva-Vidas

Rosário Carmona e Costa · 2022

Portuguese

A sensitive account of loss, care and resilience. It helps cancer survivors recognise the emotional impact of the disease on relationships and on the grieving process (both anticipatory and post-loss).

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This content was created during the YARN project, co-funded under the EU4Health Programme in 2025-2028 (Grant Agreement No. 101219053).