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Websites for people with lived experience of cancer

The internet can be a useful place to find information, resources, and different perspectives on cancer, grief, loss, and change. When you are experiencing something unfamiliar or difficult, reliable information can sometimes help make sense of what you are going through and make the experience feel a little less uncertain.

Everyone experiences cancer and its associated losses differently, and you may find yourself wondering whether what you are feeling is “normal” or why your emotions change from one day to another. Exploring trustworthy information can help you understand that there is a wide range of possible responses to illness and loss, and that there is no fixed or predictable way of moving through them.

Websites can also help you find practical support, including information about coping with loss, supporting someone with cancer, communicating with family and friends, and accessing professional or community-based support. Some also share personal stories that can offer recognition and a sense of connection.

The resources included here have been selected to provide reliable and supportive information. Explore them at your own pace and focus on what feels relevant to you. If searching for information becomes overwhelming or increases your anxiety, it is okay to take a break and return when you feel ready.

Alma Zois

almazois.gr

Offers resources on survivorship, body image, and psychosocial adjustment. It supports identity reconstruction and emotional well-being after cancer.

Visit the website

Cancer Research UK

cancerresearchuk.org

Provides evidence-based information about coping with cancer, including emotional and psychological challenges.

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European Cancer Organisation

europeancancer.org

A Europe-wide organization connecting cancer communities and resources. It supports access to information, policy initiatives, and patient-centered care.

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Evita Cancro

evitacancro.org

A nonprofit organization that supports people who are or may be affected by hereditary cancer.

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Hellenic Cancer Federation (ELLOK)

ellok.org

A national network connecting cancer patient organizations in Greece. It helps individuals access information, advocacy, and support resources.

Visit the website

Hellenic Cancer Society

cancerhellas.org

Provides information, psychosocial support services, and access to programs for patients and families in Greece. It helps individuals navigate both the medical and emotional aspects of cancer.

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Macmillan Cancer Support

macmillan.org.uk

A website with extensive information on cancer and its biopsychosocial consequences, as well as resources such as booklets, audiobooks, and blogs about cancer

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Maggie's

maggies.org

Maggie’s is a center that provides individual and group counseling, workshops, guidance on social rights, and other activities. Every Maggie’s center is a welcoming space where you can find support with financial worries, tips on managing stress, and a friendly place to go when you need someone to listen. In the website there is information as well as strategies on how to cope with the changes in your daily routine, work, school, and home life that come with living with cancer.

Visit the website

The After Cancer

theaftercancer.com

A digital space that uses AI and clinical expertise to provide 24/7 guidance on lingering side effects and emotional shifts.

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What's Your Grief

whatsyourgrief.com

“What’s Your Grief” is particularly useful because it clearly and accessibly explains the invisible and ambiguous grief commonly experienced by people with cancer (such as the loss of identity, one’s body, or one’s former life). In addition, it offers practical, evidence-based articles that help people put a name to what they’re feeling and find concrete strategies for coping with these changes.

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Young Lives vs Cancer

younglivesvscancer.org.uk

An organization providing information on support groups for adolescents and young adults, addressing challenges they may face, such as survivor guilt, body image, fertility, etc.

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Liga Portuguesa Contra o Cancro

ligacontracancro.pt

Portuguese

It offers specialized support services such as peer support groups and psycho-oncology. It provides support to patients and their families. It also addresses the grieving process following a loss. The “Vencer e Viver” Movement supports women, their families, and friends from the moment breast cancer is diagnosed.

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Mama Help

mamahelp.pt

Portuguese

Mama Help is an organization that aims to serve as a comprehensive resource center open to everyone. It provides information and support in various areas, from the initial diagnosis through all stages of the disease, and in cases of recurrence, when the impact is even greater and support is most needed.

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Oncoglam

oncoglam.pt

Portuguese

Description coming soon

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Slovensko društvo Hospic

hospic.si

Slovenian

Accompanying the dying and their relatives on their journey

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This content was created during the YARN project, co-funded under the EU4Health Programme in 2025-2028 (Grant Agreement No. 101219053).